After meeting with a second gastroenterologist about his c diff infection, she took one look at his chart and told us that she couldn't help us until we got his immune system checked. This was the first time a doctor had suggested that maybe this was more than just illness, but a weak or impaired immune system at fault. After a summer of appeals and letters to the insurance company, we got an all inclusive referral to the immunology specialists at the Children's Hospital of Philadelphia; one of the best hospitals for this specialty. It's out of network (way, way out of network), but by some crazy fortune we got it approved.
An 8:00AM appointment was made and while we didn't get a spot at the Ronald McDonald House for the night before, they did help us make a reservation at a nice hotel a block away at a seriously discounted rate. Together, we headed out to Philly.
We had started telling Charlie a few days earlier that we were taking him to a special doctor in the city. He was not happy. This child does not like doctor and quite frankly, I don't blame him one bit. Luckily, once we arrived, the city it's self was enough to distract him. Getting a room on the 10th floor didn't hurt either.
Though the appointment was significantly better than I expected, it still included a ton of blood work for poor Charlie. Seven vials of blood. UGH. I felt so, so bad having to hold him down so they could draw it. Thankfully, the phlebotomist was amazing and stuck him on the first try and got in and out as fast as she could. The blood work will break down the antibodies and immunities that he has and has built up over his life time and see how well his immune system is functioning.
On a nerdy note, the science behind what they're doing is kind of amazing. They can pull apart his blood and actually look at what antibodies he has, what is missing, and how well he is making certain cells. We should know more in about two weeks.
|Daddy hugs make everything better.
|So do donuts. Donuts also make things better.